At least 1,400 vulnerable people will spend Christmas on a hospital ward – well enough to go home, but trapped because of a social care system starved of funding – an Alzheimer’s Society investigation has revealed.
Alzheimer’s Society today warned a desperate lack of available homecare and care homes is ‘turning wards into waiting rooms’, after its investigation revealed people with dementia are being delayed up to ten times as long as those without the condition.
There is no cure for dementia, or drugs that can slow its progression, so it’s social care, rather than the NHS, that hundreds of thousands of people with dementia in the UK rely on every day. But with a £2bn social care funding shortfall, there is not enough support for people with dementia.
The investigation, which analysed data from hospital-led audits (1), found that last year people with dementia spent 500,000 extra days in hospital, despite being well enough to go home, at a cost to the NHS of over £170 million. Limited data is collected on dementia care in hospitals, and only two thirds of people with dementia have a diagnosis (2), so this is likely to be a conservative estimate of the true picture.
Prolonged stays in hospital have life-changing consequences for people with dementia – many become too frail to be discharged to their own home, with some sadly dying before they are discharged.
Julie Evans from Great Barr, Birmingham, said: “My father was admitted to hospital due to a water infection which seriously affected his confusion. Up until that time he had lived in his home with help and support from family. Whilst in hospital his dementia seemed to worsen dramatically and it was decided that he would not be able to return home and would require a care home. We had to wait for him to be allocated for assessment of his needs. We waited 4 weeks for an assessment place. He was sent to a home where I saw no stimulation or interaction, staff bought food and drink and kept guard by the doors. My dad was there for 1 week before he suffered a fall which saw him break his hip. He was admitted to hospital where he later died. In my experience of seeing both of my parents with dementia needing hospital and then care home, I can only say that neither was acceptable. The care home should have been available as soon as dad was passed fit to leave not after a further 4 weeks.
“I still cry every day because of what happened to my dad and because I had to let him go through the system, the guilt I feel will stay with me for the rest of my life. I feel very strongly about this as both my parents suffered very degrading ends to lives that had been spent as loving, caring, valuable members of society.”
Nurses on the frontline are fearful of the safety of people with dementia while they’re stuck in hospital for lengthy periods. As part of its investigation, Alzheimer’s Society carried out a survey in partnership with the Royal College of Nursing (3) which found 1 in 10 nurses surveyed have seen people with dementia waiting in hospital for over a year.
One of the nurses surveyed described hospital as ‘one of the most confusing and upsetting environments for a patient with dementia’. Another expressed concern that people with dementia ‘are much more likely to harm themselves in acute settings where they are not managed appropriately or able to have the attention they deserve to maintain their safety’.
Maria Parkes, Services Manager in Birmingham, at Alzheimer’s Society, said: “With such scarce social care funding, wards are being turned into waiting rooms, and safety is being jeopardised.
“From the woman who spent two months on a bed in a corridor because there were no available care home places, to the man who died after months of waiting left him debilitated by hospital-acquired infections, people with dementia are repeatedly falling victim to a system that cannot meet their needs.
“One million people will have dementia by 2021, yet local authorities’ social care budgets are woefully inadequate, and no new money has been promised in the budget to cope with increasing demand.
“Government attention must be focussed on social care, and pounds put behind their promises, to alleviate the pressure on our NHS hospitals, and the suffering of people with dementia on its wards.”
Dawne Garrett, Royal College of Nursing Professional Lead for the Care of Older People and Dementia, said: “Nursing staff know better than anyone how often patients with dementia are stranded in hospital when they could be discharged, if only they had more social support. Hospital is not the best place for people living with dementia, where they are at risk of falling or contracting an infection.
“The College was very concerned to see no extra resources announced for social care in last month’s Budget, and backs Alzheimer’s Society’s call for increased funding for local authorities so that they can give more support to people leaving hospital”.
