Derby man Phill Alcock has backed Queen Elizabeth Hospital Birmingham (QEHB) Charity’s appeal to bring the revolutionary Heart in a Box to the hospital, saying that it has the potential to change the lives of people like him who are waiting for a heart transplant.
Heart in a Box keeps a heart waiting to be transplanted alive outside of the body, greatly increasing the window of time that surgeons have to transplant it into the recipient before the organ begins deteriorating. QEHB Charity is fundraising to bring Heart in a Box to the hospital and doctors estimate that it will increase the number of heart transplants carried out at QEHB by up to 50%.
This will make a world of difference to patients such as Phill Alcock who is currently awaiting a heart transplant. Sadly, 20% of people on the waiting list for a heart transplant will die before an organ becomes available.
Phill has had four heart attacks in the past ten years, with the first occurring in 2007 whilst playing football. He made a swift recovery and was playing football again within seven weeks however; a year on Phill was once again playing football when he was hit by a second heart attack.
Phill went on to recover from this second heart attack only to have a third, two years on in 2010 after coaching his football team Holbrook Sports to the fifth round of the FA Vase. Phill said: “I started to feel unwell during extra time of the match and the next day I had a heart attack, my third in only three years.”
After being taken to Papworth for tests, Phill was told that he was not healthy enough for a heart transplant due to high pressure on his heart and lungs. He then faced years of waiting for his health to improve to the state where he could be considered for a transplant.
In 2015, Phill had a fourth heart attack whilst playing walking football and was taken to QEHB where Dr Lim decided that Phill required an LVAD machine to be installed. An LVAD is an artificial pump that keeps a patient with heart failure alive. It works through battery packs that the patient carries around with them, and can also be plugged into the mains.
The decision to fit Phill with an LVAD was taken around his50th birthday and this proved to be a tough time, he said: “I thought that I was going to have to say goodbye to everyone and that I wouldn’t make it. This was especially tough on my daughter Olivia who was only 15 at the time.”
Phill had separated from his wife over the previous years and said that he was “determined to carry on for my daughter’s sake.” He decided to take a trip to Liverpool with his friends and family before being admitted to hospital for his procedure.
On the Sunday night before his operation, Phill went to see a local band, The Modest, with friends when he happened to get chatting to a woman called Sarah, telling her of his reasons for going to see the band and the procedure that awaited him the next week.
Sarah said that this first encounter came out of the blue: “He initiated our first-ever conversation and came and sat down next to me. We chatted lots and made each other laugh. I remember he touched on the fact that he was going into hospital the next day, I was impressed as I would have chosen to be at home, worrying, rather than out having a good time.
“I had no idea just how inspirational to my life I would find this man in the future and when I found out the extent of the operation I was blown away by his attitude to life.”
The LVAD operation was a success and two months later Phill was well enough to leave hospital. Upon leaving, Phill returned to see The Modest, where again he bumped into Sarah. Sarah said: “He had only just come out of hospital and I was struck by how he had chosen to ‘live’ the rest of his life, his determination to live and not choose to lie on the sofa all day.”
Phill said: “I never intended to find love, I was focused on my health and taking care of Olivia but it was wonderful to meet Sarah.”
In November 2015 Phill received some wonderful news at his six month assessment; he was told that the valves in his heart and lungs had recovered sufficiently that he could go onto the list for a heart transplant. “I finally had a plan B” Phill said, “I decided that it was high time that I asked Sarah out on a date.”
Sarah said that Phill asking her out was “The best birthday present ever. Life definitely began at 40!”
However, following a couple of incidents including the bag carrying his LVAD batteries being pulled by a bystander at a gig, and falling and hitting his head on the counter at home, Phill had a bleed on the brain and went into a fit.
Phill’s family were told that he was unlikely to survive the ambulance journey. Against all the odds, Phill made it to hospital and received life-saving surgery to remove the pressure on his brain and spent the next two weeks in a coma.
Whilst Phill was in a coma, Sarah was in contact with his sister-in-law who told her that Phill had confided in her some time ago, saying that he was in love with Sarah.
He spent weeks in hospital surrounded by his family and Sarah, who said: “These weeks went by very slowly, everyone was really supportive of me, telling me all the lovely things that he had said about me. His family and friends kept me strong. I refused to believe that I had found my one and that he was going to be taken away from me.”
Phill recovered well and upon leaving hospital they were finally able to go on a date. Phill said: “It was a little surreal; she had met my entire family by this point so it was hardly a traditional first date!”
Since then, Phill and Sarah’s relationship has gone from strength to strength as Phill’s recovery has continued. Phill said: “Sarah is a wonderful person; she is always there for me and has given me a confidence and hope for the future.
“She’s had a positive impact on the whole family, especially taking the pressure off Olivia and my mother when it comes to caring for me. She is able to help me with my LVAD machine, helping to charge the batteries and plug me into the mains!”
Sarah is glad to have been able to make a difference not only to Phill’s life, but to Olivia’s too, saying: “I recognised from early on that Olivia, his daughter, had put all the pressure of keeping her father alive on her own shoulders because she wanted her father in her life for as long as possible.
“I wanted to give her the support and security that she had been without for so long. At the same time, she had been used to being Phill’s main carer for so long that I couldn’t expect her to give up this role straight away.
“Between us we shared the responsibility and Olivia grew confident to know that she could spend time away and her father would be cared for and that I would contact her for help if I needed her.”
Phill’s recovery continues, saying: “I’m in a much better way physically, I’m back up to 11 stone from a low of just eight, I’m back doing some DJ-ing and even coaching the occasional football match. My life use to revolve around my health to the point where every conversation I had was about it. Now, I just want to talk to people about things that I like. Sarah and I are planning on going on holiday next which proves how much better I am now!”
Speaking of life with an LVAD machine, Phill said: “It can be tough. Every time I go to Sarah’s house I have to take two suitcases full of batteries and other things to keep me going. Whenever I’m on the road I’m worried about my batteries, we all hate it when our phones die on us but I’ve got even bigger things to worry about!”
Phill knows that the long term plan has to include a heart transplant and is still waiting on the call to come through to say that there is a heart ready for him. One thing that keeps him going is the thought of competing in the transplant games: “I love to play sport and I really miss that aspect of my life, it would be amazing to be able to compete again if I have a heart transplant.”
Speaking of the difference that Heart in a Box would make, Phill said: “It sounds like an incredible invention. At the moment it’s hard to stay positive whilst waiting for a transplant, I know that the chances of a suitable heart becoming available for me are slim.
“A lot of the difficulties come from basic factors like geography. If a heart becomes available in Glasgow it’s going to take a long time to get to where I need it and during this time it’s going to be deteriorating. The longer it’s out of the body the less chance you’ve got of it being accepted by the recipient’s body.
“Heart in a Box can change this, and I know that it will have such an amazing impact on people like me who are waiting for a heart to become available.”
Justine Davy, Head of Fundraising for QEHB Charity said: “Phill has been through such a lot and his story of survival is frankly incredible. It means a huge amount to have his support for the Charity’s appeal, Phill’s story highlights the need for this amazing piece of equipment and demonstrates the difference it will make to people’s lives.”
“The generous donations that the Charity receives will make it possible to bring Heart in a Box to QEHB, changing lives and increasing the number of transplants carried out at the hospital.
“I look forward to hearing the stories of patients in the future who have benefitted from Heart in a Box and I wish Phill and Sarah the very best for the future.”
To find out more about Heart in a Box and to donate to the appeal, go to qehb.org/heart
